Interventions for adults with deafblindness - an integrative review.

Purpose: To compile the current research on interventions for rehabilitation aimed at adults (aged 18-65 years) with deafblindness.

Materials And Methods: A comprehensive search was conducted in eight databases. An additional manual search was also carried out.

Interventions for children with deafblindness-An integrative review.

Background: Deafblindness is a rare condition, and its prevalence has been reported to be approximately 1 in 27 000 new-borns worldwide. For individuals with deafblindness, lifelong interventions and support are needed to be able to develop communication, be active and preserve a good quality of life. Because little is known about what kind of support and interventions can be offered to children with deafblindness, the aim was to summarize and disseminate research findings regarding this topic.

Living an ordinary life - yet not: the everyday life of children and adolescents living with a parent with deafblindness.

Introduction: The family life of people living with one family member with deafblindness has been sparsely described.

Purpose: The aim of the study was to explore how children experience their everyday family life when having a parent with deafblindness.

Methods: An explorative study in which data have been collected by qualitative interviews of children.

Experiences of rehabilitation services from the perspective of older adults with dual sensory loss - a qualitative study.

Purpose: To describe the rehabilitation service experiences of older adults with dual sensory loss (DSL).

Methods: Twenty older adults aged ≥65 years with DSL participated in semistructured interviews. Inductive qualitative content analysis was conducted.

Device abandonment in deafblindness: a scoping review of the intersection of functionality and usability through the International Classification of Functioning, Disability and Health lens.

Objectives: Abandonment of vision, hearing or mobility aids suggests common barriers and facilitators to ongoing device use. However, the possible interactive effects of combined hearing and vision disabilities on device use by those living with deafblindness are unclear. Here we summarise existing knowledge on variables influencing assistive technology use from the perspective of persons living with deafblindness.

The lived experiences of work and health of people living with deaf-blindness due to Usher syndrome type 2.

: This study aimed to explore lived experiences with working life from the perspective of people with deafblindness due to Usher syndrome type 2 (USH2). : A limited number of studies have explored working life of people with Usher syndrome. One study of individuals with USH2 showed that work active reported significantly better psychological health compared to non-working individuals.

Similarities and Differences in Health, Social Trust, and Financial Situation in People With Usher Syndrome, a Bio-Psychosocial Perspective.

Purpose: The primary aim was to describe the similarities and differences among the general health, physical health, psychological health, social trust, and financial situations of people with Usher syndrome (USH) types 1, 2, and 3. A second aim was to explore whether age, gender, clinical diagnosis, visual field, visual acuity, and degree of hearing impairment were associated with the general health, physical health, psychological health, social trust, and financial situations of people with USH.

Methods: In this study, 162 people with USH living in Sweden were included, and all three types of the disease were represented.

Prevalence, diagnoses and rehabilitation services related to severe dual sensory loss (DSL) in older persons: a cross-sectional study based on medical records.

Objective: To estimate the prevalence of severe dual sensory loss (DSL) among older persons (aged ≥65 years) in the Swedish population, to identify the diagnoses that cause severe DSL, and to identify rehabilitation services in which the participants have been involved.

Design: A cross-sectional design was applied. Medical records from Audiological, Low Vision, and Vision clinics from two Swedish counties were used.

Life strategies of people with deafblindness due to Usher syndrome type 2a - a qualitative study.

: To explore life strategies in people with Usher syndrome type 2a. : There are no studies on life strategies in people with Usher syndrome. People with deafblindness are often described in terms of poor health and low quality of life, or as being vulnerable.

Health, work, social trust, and financial situation in persons with Usher syndrome type 1.

Background: Research has demonstrated that persons with Usher syndrome type 1 (USH1) have significantly poorer physical and psychological health compared to a reference group.

Purpose: To explore the relation between work, health, social trust, and financial situation in USH1 compared to a reference group.

Material: Sixty-six persons (18-65 y) from the Swedish Usher database received a questionnaire and 47 were included, 23 working and 24 non-working.