Publications by authors named "Miriam Saso"
Background: The COVID-19 pandemic demanded quick exchanges between experts and institutions supporting governments to provide evidence-based information in response to the crisis. Initially, there was no regular cross-country forum in the field of population health. This paper describes the set-up and benefits of implementing such a forum.
View Article and Find Full Text PDFBackground: Timely and high-quality population-level health information is needed to support evidence-informed decision-making, for planning and evaluation of prevention, care and cure activities as well as for research to generate new knowledge. FAIR (Findable, Accessible, Interoperable and Reusable) principles are one of the key elements supporting health research and making it more cost-effective through the reuse of already existing data. Currently, health data are in many countries dispersed and difficult to find and access.
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- The COVID-19 pandemic has emphasized the need for effective health information systems (HIS) to manage public health emergencies, prompting assessments of HIS in eight European countries to identify gaps and best practices.
- The assessments revealed key themes related to organizational, technical, legal, and resource challenges in HIS, with varying approaches taken by different countries to enhance their systems.
- To improve pandemic preparedness, countries need to strengthen their HIS through better data sharing laws, standardization, fostering public trust, and addressing workforce resource gaps.
Background: Before the COVID-19 pandemic, a need for a uniform approach to health information (HI) knowledge in population health analysis across Europe was evident. The Population Health Information Research Infrastructure (PHIRI) emerged as a proactive initiative to strengthen European HI capacities. This article describes the achievements of PHIRI, highlighting its capacity-building activities and their contribution towards a sustainable strategy for the implementation of the European Health Data Space (EHDS).
View Article and Find Full Text PDFBackground: In Europe, data on population health is fragmented, difficult to access, project-based and prone to health information inequalities in terms of availability, accessibility and especially in quality between and within countries. This situation is further exacerbated and exposed by the recent COVID-19 pandemic. The Joint Action on Health Information (InfAct) that builds on previous works of the BRIDGE Health project, carried out collaborative action to set up a sustainable infrastructure for health information in the European Union (EU).
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