Publications by authors named "Mirabai Galati"
Public Health Genomics
November 2024
Article Synopsis
- - The Generation Study (GS) aims to recruit 100,000 newborns in England to utilize whole genome sequencing for early detection and treatment of rare conditions, while also exploring lifelong genome storage and the complexities involved in newborn consent and genomic medicine research.
- - Over two years, the GS team conducted 9 rounds of Design Research with 105 expectant and recent parents to co-design and test consent materials, uncovering challenges and facilitators in the consent process.
- - Involving parents in the design process has enriched understanding of informed decision-making for genome sequencing, suggesting that continuous research and design iterations can enhance how consent materials are crafted and communicated.
