People with intellectual disability and their risk of exposure to violence: Identification and prevention - a literature review.

The aim of the literature review was to identify knowledge and knowledge gaps concerning risks of violence toward children, youth, adults and elderly with intellectual disabilities, and how risks can be identified and prevented. The research revealed that children, youths and adults labelled with intellectual disabilities are more exposed to violence than others and that the target group lack knowledge about risks of violence and what it means to be exposed to violence. It was also found that professionals who work with people with intellectual disabilities may lack knowledge about violence, and those who work with violence lack knowledge about intellectual disabilities.

Factors associated with positive work experience among professionals supporting people with intellectual disabilities: a comparative analysis of three welfare organisations in Sweden.

Given the crucial role professionals play in maintaining the well-being of people with intellectual disabilities, their views on work satisfaction are relevant to analyse. A comparative analysis that takes into account the support provided in different welfare organisations can be of certain importance. The aim is to analyse the most common aspects of professional work satisfaction in work with people with intellectual disabilities in schools, healthcare, and social services, and to apply a comparative analysis of such experience taking into account respondents' organisational affiliations.

Opportunity to participate in planning and evaluation of support for children with disabilities: Parents' and professionals' perspectives.

A random sample of parents of children with disabilities ( = 144) from three Swedish municipalities participated in a structured telephone interview including seven questions on child participation and 156 professionals from the same municipalities completed a web-based survey including six questions on child participation. The aim of the study was to explore parents' and professionals' (1) ratings of the opportunities available to children with disabilities to participate in planning, decision-making and evaluation of support and (2) satisfaction with the children's current level of such participation. The results indicated that opportunities for children with disability to participate directly in decision-making processes were limited.

Groups for Parents with Intellectual Disabilities: A Qualitative Analysis of Experiences.

Background: Parents with intellectual disabilities (IDs) are often socially isolated and need support.

Materials And Methods: This qualitative study is based on participant observations of a group for parents with with intellectual disabilities. Data were categorized and interpreted in the framework of social capital and symbolic interactionism.

Understanding support workers' competence development in working with parents with intellectual disability.

Training for support workers who work with parents with intellectual disability can be aided by understanding how they perceive the training process and their competence development. This study explored the perceptions of competence development and the training process in Swedish support workers trained in the evidence-informed programme 'Parenting Young Children' (PYC). Training included a workshop, monthly peer support groups and access to a programme manual.

Everyday life of young adults with intellectual disabilities: inclusionary and exclusionary processes among young adults of parents with intellectual disability.

Ten young adults with an intellectual disability whose parents, too, have an intellectual disability were interviewed and completed questionnaires for this exploratory study aimed at charting their experiences of everyday life. Most of the participants reported high life satisfaction, especially with the domains of friends, leisure time, and family, and considered their families as a resource for their empowerment and development of resilience. The study participants' informal networks were composed of only a few individuals who, moreover, were mostly of dissimilar age and also included support professionals.

Parents' experience of support in Sweden: its availability, accessibility, and quality.

Semi-structured interviews were conducted with six parents of children with intellectual disabilities, in the Western region of Sweden. The aim of the study was to explore and to gain a deeper understanding of parents' experiences of received support for them and their children with intellectual disabilities. We focused particularly on their experiences of the availability, accessibility, and the quality of services.

Parenting with disabilities: experiences from implementing a parenting support programme in Sweden.

This article reports on the initial stages of implementing an Australian-based education programme for parents with intellectual disabilities (IDs) in Sweden. The clinical utility of the programme, Parenting Young Children (PYC), in the new country context is explored through Swedish professionals' experiences in learning and using it. Study participants found PYC well suited for use in their working environment.

Young adults with intellectual disability recall their childhood.

Eleven young adults with an intellectual disability were interviewed for this exploratory study aimed at charting their experiences of growing up in homes where at least one parent had the same or a similar disability. Two main themes emerged from the interviews. Firstly, a clear majority of the young adults had positive experiences of family life during their upbringing, as expressed especially through their memories of their grandparents.

Women and men with intellectual disabilities who sell or trade sex: voices from the professionals.

The phenomenon of women and men with intellectual disabilities (ID) selling or exchanging sexual services is poorly understood. In this study, the authors explored the knowledge and perceptions of this phenomenon shared by professionals working in the field. Focus group discussions demonstrated broad familiarity with the phenomenon.

Encounters with professionals: views and experiences of mothers with intellectual disability.

Seven Swedish mothers with an intellectual disability were interviewed for this exploratory study, aimed at charting such mothers' views and experiences of their encounters with different health and social service professionals. Three distinct themes emerged from the interviews. First, the mothers experienced the interaction to be marred by lack of comprehensibility, resulting from inadequate information and their perception of not being treated properly.

Parents' needs for knowledge concerning the medical diagnosis of their children.

It is reported that parents can handle their reactions of having a child with a chronic illness by seeking information and gaining knowledge about the diagnosis. It has been suggested that this is a way for parents to restore order in a chaotic existence. A complement to this perspective is to focus on what it means to be a parent and what is included in parenthood.

Parents' experiences of receiving the diagnosis of Turner syndrome: an explorative and retrospective study.

Turner syndrome (TS) is a sex-chromosome disorder occurring in approximately 1:2500 female births. In this explorative and retrospective study, 44 parents (33 mothers and 11 fathers) from different families, each containing a girl with TS, were interviewed to explore their perceptions and experiences of the diagnostic process, including the period of investigation and the time when the diagnosis was given. There was wide variation in degree of retrospection in this study; one parent who was interviewed had a daughter of 17 years of age who was diagnosed before 1 month of age.