Patient-Reported and Parent Proxy-Reported Outcomes in Pediatric Medical Specialty Clinical Settings: A Systematic Review of Implementation.

Objective: Youth with chronic illness are at higher risk for psychosocial difficulties, leading to a call for screening via patient-reported outcomes (PROs). The purpose of the current review is to summarize PRO implementation in pediatric medical specialty settings. A literature review of PRO implementation in these settings, conceptual issues, value and approach, legal and ethical concerns, as well as a case example of PROA in type 1 diabetes are presented.

Psychometric Properties of the Parent and Child Problem Areas in Diabetes Measures.

Objective: Children with type 1 diabetes and their parents face daily self-care demands, leading to diabetes-specific emotional distress. A standardized measure of diabetes distress can guide clinical care and prevent negative outcomes.

Methods: This study evaluated the psychometric properties of child- and parent-report measures of the Problem Areas in Diabetes Scale, adapted for children ages 8-12 (PAID-C) and their parents (P-PAID-C).

Parent-adolescent dyadic diabetes distress: Associations with A1c and diabetes-related strengths.

Introduction: This study examined concordance and discordance between parent-adolescent report of diabetes-specific emotional distress and associations with A1c and diabetes-related strengths. refer to adaptive behaviors and attitudes that enhance resilience in living with diabetes.

Method: One thousand two hundred sixteen adolescent-parent dyads completed measures of diabetes distress and adolescent-reported diabetes strengths.

Psychometric Properties of the Problem Areas in Diabetes: Teen and Parent of Teen Versions.

Objective: This study adds to the literature on the psychometric properties of the Problem Areas in Diabetes-Teen (PAID-T) and Parent (P-PAID-T) Versions. It also aims to shorten the measures of diabetes-specific distress, determine construct validity, and establish cutoff scores.

Methods: Data are from two independent studies (N = 1,265).

Examining the energy envelope and associated symptom patterns in chronic fatigue syndrome: does coping matter?

OBJECTIVE/Hypothesis The objective of this study was to examine sub-types of individuals with chronic fatigue syndrome based on variables that are associated with the energy envelope theory and to examine the role of coping strategies in explaining the differences found between the subtypes. METHODS Cluster analysis was used. Grouping variables included physical functioning, post-exertional malaise severity, and the extent to which an individual was outside of the energy envelope.

Contrasting Case Definitions: The ME International Consensus Criteria vs. the Fukuda et al. CFS Criteria.

This article contrasts the Myalgic Encephalomyelitis International Consensus Criteria (ME-ICC) (Carruthers et al., 2011) with the Fukuda et al. (1994) CFS criteria.

Adolescent peer relationships and behavior problems predict young adults' communication on social networking websites.

This study examined online communication on social networking web pages in a longitudinal sample of 92 youths (39 male, 53 female). Participants' social and behavioral adjustment was assessed when they were ages 13-14 years and again at ages 20-22 years. At ages 20-22 years, participants' social networking website use and indicators of friendship quality on their web pages were coded by observers.