Publications by authors named "Melissa Stanworth"
Article Synopsis
- The study aimed to create and validate a Patient Reported Experience Measure (PREM) for patients and carers involved in experimental cancer medicine trials (ECM), referred to as PREM-ECM.
- Using a mixed methods approach, researchers gathered input through interviews and focus groups, ultimately developing questionnaires that assess experiences both before and during trial participation.
- The final results led to three distinct PREMs: a 14-item 'prior' questionnaire for initial trial experiences, a 15-item 'on-trial' questionnaire for ongoing participation, and a 13-item measure for carers, all demonstrating good validity and reliability for practical use.
Introduction: The COVID-19 pandemic impacted the care and experiences of people with cancer, but it presented an opportunity to improve the delivery of outpatient care post-pandemic.
Materials And Methods: We performed an observational cross-sectional study with people with lung cancer throughout the COVID-19 pandemic. A survey investigated patients' experiences and preferences regarding the delivery of cancer care to plan for post-pandemic care, as well as the pandemic's impact on their functional status (physical and psycho-social), exploring the role of age and frailty.
Article Synopsis
- - The study investigates how lung cancer patients experienced changes in their care and personal lives during COVID-19, focusing on their evolving needs.
- - Researchers conducted semi-structured telephone interviews with 30 lung cancer patients and identified three main themes: adapting to remote communication, altered care delivery, and the pandemic's negative impact on quality of life.
- - Findings suggest that while remote consultations had some benefits, the changes caused psychological distress and limited support networks for patients, emphasizing the need to consider individual patient circumstances in care decisions.