What were you thinking?: individuals at risk for Huntington Disease talk about having children.

Most of the research on reproduction in those at risk for Huntington Disease (HD) has focused on the impact of genetic testing on reproductive decision-making. The main goal has been to determine whether discovering one is a carrier of the HD mutation changes an individual's or couple's decision to start a family or to have more children. The purpose of this qualitative study was to examine reproductive decision-making in a sample of individuals at risk for HD who have chosen not to pursue genetic testing.

Doing Heideggerian hermeneutic research: a discussion paper.

Background: Much has been published related to the epistemology of Heideggerian hermeneutic research. We seek to reveal insights from our experience of enacting such research.

Objective: To articulate the lived experience of 'doing' Heideggerian hermeneutic research.

Living at risk: concealing risk and preserving hope in Huntington disease.

Much of the qualitative research on Huntington disease has focused on the genetic testing aspects of HD. The overall purpose of this qualitative study was to gather information about the everyday experience of living with the risk of developing Huntington disease in a sample of individuals at risk for HD who have chosen not to pursue genetic testing. Data for this article was obtained from unstructured, open-ended qualitative interviews of a sample of people participating in the PHAROS study.

Why do adolescents with type 1 diabetes and their parents participate in focus groups?

Almost all patient-centered research is dependent on voluntary participation by participants. Many forces, however, act to either encourage or inhibit people from deciding to participate. This study explored adolescents' with type 1 diabetes and their parents' reasons for participating in a research study.

Clinical Prevention and Population Health Curriculum Framework: the nursing perspective.

The Clinical Prevention and Population Health Curriculum Framework (Curriculum Framework) was developed by the Healthy People Curriculum Task Force comprised of representatives from allopathic and osteopathic medicine, dentistry, nursing and nurse practitioners, pharmacy and physicians assistants. This multidiscipline Task Force was covened to address the Healthy People 2010 objective of increasing the health promotion/prevention content in health professional education. A focus on clinical prevention and population health activities is central to the goal of improving the health status of the nation and offers the greatest potential to reduce many leading causes of death and improve quality of life across diverse populations.

Living with a colicky infant.

Infant colic is prolonged hard crying for no apparent reason in an otherwise healthy infant. The purpose of this study was to describe the parents' experiences of caring for their infants with colic. This qualitative study employed a multiple case study design using a descriptive approach through indepth interviews.

Clinical prevention and population health: curriculum framework for health professions.

The Clinical Prevention and Population Health Curriculum Framework is the initial product of the Healthy People Curriculum Task Force convened by the Association of Teachers of Preventive Medicine and the Association of Academic Health Centers. The Task Force includes representatives of allopathic and osteopathic medicine, nursing and nurse practitioners, dentistry, pharmacy, and physician assistants. The Task Force aims to accomplish the Healthy People 2010 goal of increasing the prevention content of clinical health professional education.

The meaning of health in mammography screening for African American women.

Inadequate use of mammography screening for early detection of breast cancer is an important factor associated with the disproportionate breast cancer death rates in African American women. To improve understanding of the mammography screening experience and health for African Americans, focus groups were held with 30 African American women. Seven categories emerged: (a) the mind, body, and spirit connection: (b) living your life; (c) looking good; (d) good health-bad health; (e) prevention-detection confusion; (f) being afraid of cancer; and (g) what gets in the way.

Quality of life after among ovarian germ cell cancer survivors: a narrative analysis.

Purpose/objectives: To describe and interpret the meaning of experiences that are important to the quality of living of ovarian germ cell cancer survivors.

Research Approach: Qualitative description within a constructivist paradigm.

Setting: 32 member sites of the Gynecologic Oncology Group and the University of Texas M.