What were you thinking?: individuals at risk for Huntington Disease talk about having children.

Most of the research on reproduction in those at risk for Huntington Disease (HD) has focused on the impact of genetic testing on reproductive decision-making. The main goal has been to determine whether discovering one is a carrier of the HD mutation changes an individual's or couple's decision to start a family or to have more children. The purpose of this qualitative study was to examine reproductive decision-making in a sample of individuals at risk for HD who have chosen not to pursue genetic testing.

Doing Heideggerian hermeneutic research: a discussion paper.

Background: Much has been published related to the epistemology of Heideggerian hermeneutic research. We seek to reveal insights from our experience of enacting such research.

Objective: To articulate the lived experience of 'doing' Heideggerian hermeneutic research.

Living at risk: concealing risk and preserving hope in Huntington disease.

Much of the qualitative research on Huntington disease has focused on the genetic testing aspects of HD. The overall purpose of this qualitative study was to gather information about the everyday experience of living with the risk of developing Huntington disease in a sample of individuals at risk for HD who have chosen not to pursue genetic testing. Data for this article was obtained from unstructured, open-ended qualitative interviews of a sample of people participating in the PHAROS study.

Why do adolescents with type 1 diabetes and their parents participate in focus groups?

Almost all patient-centered research is dependent on voluntary participation by participants. Many forces, however, act to either encourage or inhibit people from deciding to participate. This study explored adolescents' with type 1 diabetes and their parents' reasons for participating in a research study.

The meaning of health in mammography screening for African American women.

Inadequate use of mammography screening for early detection of breast cancer is an important factor associated with the disproportionate breast cancer death rates in African American women. To improve understanding of the mammography screening experience and health for African Americans, focus groups were held with 30 African American women. Seven categories emerged: (a) the mind, body, and spirit connection: (b) living your life; (c) looking good; (d) good health-bad health; (e) prevention-detection confusion; (f) being afraid of cancer; and (g) what gets in the way.

Quality of life after among ovarian germ cell cancer survivors: a narrative analysis.

Purpose/objectives: To describe and interpret the meaning of experiences that are important to the quality of living of ovarian germ cell cancer survivors.

Research Approach: Qualitative description within a constructivist paradigm.

Setting: 32 member sites of the Gynecologic Oncology Group and the University of Texas M.