The patient's perspective on the burden of psoriasis: findings based on the ROCQ, an online survey.

Psoriasis is a common chronic skin disease, with well-characterised impact on quality-of life, however, no information is available on the lifetime impact of psoriasis on patients' lives. This descriptive cross-sectional web-based survey of patients with psoriasis, recruited from an online patient community, was conducted in France in 2021. Established questionnaires (Major Life-Changing Decision Profile-MLCDP, Dermatology Life Quality Index-DLQI, Hospital Anxiety and Depression Scale [HADS]), CAGE and BRIEF-COPE) were administered together with specially created questions.

[Polycystic kidney disease: An analysis of e-patients exchanges in the public blogosphere].

The goal this study was to understand the preoccupations of e-patients with Autosomal Dominant Polycystic Kidney Disease (ADPKD), through their discussions on social networks, and to compare them with those of members of a specialized association. We collected and analyzed all messages containing an unequivocal expression of the pathology (polycystic kidney disease, PKD, ADPKD, etc.) available on public forums on the French Internet and all french-language messages posted on the forum of the patient group Association Polykystose-France (PKD-France) during 2 years.