Publications by authors named "Melanie Clode"

Article Synopsis
  • The Fontan population, consisting of both children and adults with complex health problems, faces unique nutritional challenges that are often overlooked in research beyond childhood.
  • This review article examines existing literature on nutritional management strategies and highlights significant concerns such as protein-losing enteropathy, growth deficits, and emerging issues like altered body composition and glucose metabolism.
  • Despite recognizing various nutrition-related problems linked to Fontan physiology, many aspects, including the effects of congenital heart disease on nutrition and the role of the microbiome, are still poorly understood and need further exploration.
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Purpose: To examine how socio-demographic, comorbidities and information needs influence quality of life (QoL) outcomes of survivors of breast, colorectal, or prostate cancer, non-Hodgkin lymphoma or melanoma.

Methods: Cross-sectional postal survey with eligible participants identified through a population-based cancer registry. QoL outcomes were assessed by EQ-5D-5L, social difficulties index (SDI) and, for those employed at diagnosis, current employment.

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Despite developments in surgical techniques and medical care, people with a Fontan circulation still experience long-term complications; non-invasive therapies to optimize the circulation have not been established. Exercise intolerance affects the majority of the population and is associated with worse prognosis. Historically, people living with a Fontan circulation were advised to avoid physical activity, but a small number of heterogenous, predominantly uncontrolled studies have shown that exercise training is safe-and for unique reasons, may even be of heightened importance in the setting of Fontan physiology.

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This research sought to answer the question 'what quality criteria do survivorship experts consider to be important in achieving optimal cancer survivorship care?'. An online modified reactive Delphi survey consisting of two rounds was completed with experts including consumers, clinicians, researchers, policymakers and quality and accreditation professionals. Survey items were based on international literature and considered three domains: Policy, process and outcome.

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