The purpose of this qualitative study was to describe the lived experiences of adults with sickle cell disease-related pain. Using a qualitative, phenomenological approach, a purposive sample of 13 African-American adults living with Sickle Cell Disease (SCD) was recruited from a national SCD support group. Participants were asked to describe living with SCD-related pain and their experiences with pain management.
View Article and Find Full Text PDFImanagers J Nurs
January 2011
Healthcare provision pertaining to painful, chronic conditions can best be optimized by developing positive healthcare provider (HCP)-patient relationships that minimize fragmented care. Nurses, with their holistic, humanistic approach provide a multidimensional focus that fosters individualized and effective outcomes for chronic events. The chronic pain phenotype is subjective, difficult to assess, define and effectively manage.
View Article and Find Full Text PDFUnlabelled: This literature review explores the potential of genomics to explain, or at least contribute to the discussion about, heterogeneity in chronic pain in sickle-cell disease (SCD).
Background: Adults with SCD, a single-gene disorder, are living longer than in years past, yet report being burdened by chronic pain. With only a few studies on chronic pain in this population, the epidemiology is unclear.