Publications by authors named "Maryjess Pornillos"
Article Synopsis
- This study examines how patient-reported outcomes (PROs) like the CFQ-R Respiratory score and CRISS can track changes over time and identify acute respiratory events in children with cystic fibrosis (CF).
- Conducted over two years, the research involved regular assessments of children aged 6-18 and highlighted that while symptom scores remained stable during clinically stable visits, certain score changes were effective in predicting acute events.
- Results indicated that the parent-proxy CFQ-R score was more accurate than the self-reported version for detecting acute issues, and the predictive values improved significantly when these scores were combined with lung function measurements (LCI and FEV).
