Mexican Americans have as much as a six-times greater risk of end-stage renal disease (ESRD) than non-Hispanic white Americans, and women show a faster rate of decline in diabetic renal functioning. The leading treatment for ESRD is hemodialysis, an intensive, complex treatment regimen associated with high levels of patient nonadherence. Previous studies of patient adherence have adopted a biomedical, practitioner-oriented approach focused on performance of fixed behaviors and ignoring contextual and motivational factors.
View Article and Find Full Text PDFThe purpose of this multisite exploratory research study involving focus groups of consumers and service providers was to generate stakeholder input for a statewide strategic plan for genetic services in the southwestern region of the United States. This article describes the qualitative methods by which the data were collected and summarizes major themes in participants' perceptions about genetic services. It also describes processes related to obtaining genetic services and characteristics of an ideal service delivery system for children affected by genetic disorders and the families that care for them.
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December 2006
Patients frequently do not fully adhere to treatment regimens. Despite the fact that this issue has been extensively researched, patient nonadherence is still not well understood. Previous studies have tended to neglect the study of phenomenological perceptions and psychosocial influences on nonadherence behavior as well as issues unique to culturally diverse populations.
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