Parental Perspectives on Communication from Health Care Providers following a Newborn Diagnosis of Congenital Cytomegalovirus Infection: A Secondary Analysis of a Qualitative Study.

The study objective was to identify communication messages that parents of children diagnosed with congenital cytomegalovirus (cCMV) infection reported as essential and helpful. We performed a secondary analysis of focus groups and interviews conducted with 41 parents of children with cCMV who had enrolled in a long-term follow-up cCMV study at an academic medical center. Three groups of parents who had children with cCMV participated in the study: parents with children symptomatic at birth, parents with children asymptomatic at birth who later developed sensorineural hearing loss, and parents with children asymptomatic at birth who remained asymptomatic into adulthood.

Life in Data Sets: Locating and Accessing Data on the Health of Americans Across the Life Span.

Context: The US government manages a large number of data sets, including federally funded data collection activities that examine infectious and chronic conditions, as well as risk and protective factors for adverse health outcomes. Although there currently is no mature, comprehensive metadata repository of existing data sets, US federal agencies are working to develop and make metadata repositories available that will improve discoverability. However, because these repositories are not yet operating at full capacity, researchers must rely on their own knowledge of the field to identify available data sets.

Challenges with hepatitis B vaccination of high risk adults - A pilot program.

Background: Acute hepatitis B virus (HBV) infections in the United States occur predominantly among persons aged 30-59 years. The Centers for Disease Control and Prevention (CDC) recommends vaccination of adults at increased risk for HBV infection. Completing the hepatitis B (HepB) vaccine dose-series is critical for optimal immune response.

Promoting brain health for African Americans: evaluating the healthy brain initiative, a community-level demonstration project.

Introduction: African Americans are at significantly greater risk than non-Hispanic Whites or Hispanics for cognitive impairment. This study presents an evaluation of the Alzheimer's Association's Healthy Brain Initiative, a culturally tailored community-level intervention to increase knowledge and awareness of brain health among African American baby boomers.

Methods: The evaluation used a mixed-method design with data collection before, during, and after intervention implementation.