Publications by authors named "Marlijn de Beer"
Objective: We investigated motivations of patients and care partners for their memory clinic visit, and whether these are expressed in consultations.
Methods: We included data from 115 patients (age 71 ± 11, 49% Female) and their care partners (N = 93), who completed questionnaires after their first consultation with a clinician. Audio-recordings of these consultations were available from 105 patients.
What patients want to know, and what we actually tell them: The ABIDE project.
Alzheimers Dement (N Y)
December 2020
Background: We studied to what degree and at whose initiative 25 informational topics, formerly identified as important, are discussed in diagnostic consultations.
Methods: Audio recordings of clinician-patient consultations of 71 patients and 32 clinicians, collected in eight Dutch memory clinics, were independently content-coded by two coders. The coding scheme encompassed 25 informational topics.
Background: We aimed to explore clinicians' communication, including the discussion of diagnosis, cause, prognosis and care planning, in routine post-diagnostic testing consultations with patients with Mild Cognitive Impairment (MCI).
Methods: Thematic content analysis was used to analyze audiotaped consultations in which 10 clinicians (eight neurologists and two geriatricians) from 7 memory clinics, disclosed diagnostic information to 13 MCI patients and their care partners. We assessed clinician-patient communication regarding diagnostic label, cause, prognosis and care planning to identify core findings.
Article Synopsis
- The study investigates how memory clinic clinicians communicate uncertainty during post-diagnostic consultations about Alzheimer's disease with patients and caregivers.
- It finds that clinicians expressed uncertainty in 73% of consultations, primarily regarding the patient's diagnosis and future symptom progression, with a significant portion initiated by patients or caregivers.
- The research highlights a gap in communication as clinicians did not address uncertainty in about 25% of the consultations, suggesting a need for more evidence on the impact of discussing uncertainty on patients’ experiences.
Objective: Spinal subdural hematomas (SSDHs) are rare. Causes are (1) posttraumatic, (2) iatrogenic (following surgery or lumbar puncture), (3) spontaneous including underlying malformations or coagulation deficits. With a systematic review of literature we want to shed light on the last group: symptomatology, etiology, treatment and outcome will we discussed.
View Article and Find Full Text PDFCognitive Decline in Patients with Chronic Hydrocephalus and Normal Aging: 'Growing into Deficits'.
Dement Geriatr Cogn Dis Extra
October 2016
Background/aim: To explore the theory of 'growing into deficits', a concept known from developmental neurology, in a series of cases with chronic hydrocephalus (CH).
Methods: Patients were selected from the Amsterdam Dementia Cohort and underwent extensive dementia screening.
Results: Twelve patients with CH were selected, in whom Alzheimer's disease was considered unlikely, based on biomarker information and follow-up.
Background: Vision problems are common and the causes are diverse. This case illustrates the fact that vision problems may also be the first manifestation of a neurodegenerative disorder.
Case Description: A 46-year-old male developed progressive, incapacitating vision problems.
Objective: To study the frequency of additional cerebral demyelination in Dutch patients with adrenomyeloneuropathy (AMN).
Methods: Consecutive patients with AMN from the Dutch X-linked adrenoleukodystrophy cohort without cerebral demyelination on MRI at inclusion, seen between January 1, 1992, and January 1, 1999, were included. Primary endpoints were brain involvement, death, or the end of follow-up on January 1, 2011.