Perceived barriers and facilitators to good end of life care: Focusing on people with intellectual disabilities.

Background: People with intellectual disabilities are often left out of research on important topics. This exploratory study investigated their views on barriers and facilitators to accessing care at end of life, both at home and in a hospice setting.

Method: This qualitative study used reflexive thematic analysis.

Qualitative methodological approaches involving participants with intellectual disabilities: Scoping review of literature exploring death and dying.

Background: A paucity of qualitative research on sensitive topics that focuses on participants with intellectual disabilities leaves their views unexplored. This scoping review mainly aimed to provide an overview of qualitative data collection methods used in research involving participants with intellectual disabilities to explore death and dying.

Method: A scoping review of primary research and methodological papers published between January 2008 and March 2022 was conducted.