Publications by authors named "Marie-Noelle Wharton"
Background: Although sex differences in pain are well documented, little is known regarding the relationship between gender and pain. Gender-diverse youth experience unique pain risk factors, including minority stress exposure, but are underrepresented in research.
Objective: Elicit experiences of gender-diverse youth who live with chronic pain.
Article Synopsis
- The study assessed the feasibility of using co-designed in-home data collection methods with families of youth with developmental disabilities, focusing on youth aged 14-18 with conditions like autism, cerebral palsy, and chronic pain.
- Over 14 days, participants engaged in data collection by wearing accelerometers, completing questionnaires, and sampling saliva, with results showing decent engagement but some challenges in adherence to the saliva sampling.
- Families expressed high satisfaction and interest in participating again, highlighting the importance of the research's relevance and the necessity for personalized approaches based on their feedback.
Objective: Quality child health research requires multimodal, multi-informant, longitudinal tools for data collection to ensure a holistic description of real-world health, function, and well-being. Although advances have been made, the design of these tools has not typically included community input from families with children whose function spans the developmental spectrum.
Methods: We conducted 24 interviews to understand how children, youth, and their families think about in-home longitudinal data collection.