Publications by authors named "Marie-Louise Luttik"

Background: Medical consultations with older patients often include triadic conversations and decision-making processes involving physicians, patients, and family members. The presence of family members may change the communication dynamics and therefore increase the complexity of the consultation and decision-making process.

Objective: This study explored associations between physicians' shared decision-making (SDM) behaviour and patients' and family members' participation in the decision-making process.

View Article and Find Full Text PDF

Background: Informal care is an essential part of support provided in the homecare setting. To ensure effective healthcare provision, good communication and collaboration between informal and formal care providers are crucial. To achieve this aim, it is necessary to have a clear understanding of the perspectives of all stakeholders.

View Article and Find Full Text PDF

Objective: We designed a Patient and Family Participation Education Program (PFEP) with the aim of fostering a positive attitude and enhancing the competencies of hospital nurses required for effective patient and family participation in care.

Methods: In a Dutch university hospital, we conducted a before-after study. The PFEP comprising three courses: family conversation, supporting shared decision-making, and health literacy.

View Article and Find Full Text PDF

Introduction: There is a growing interest in the involvement of family members of older patients with cancer in decision-making processes. The aim of this study is to identify how and to what extent family members, together with patients and physicians, are involved in triadic decision-making processes in clinical practice.

Materials And Methods: This study was conducted using an exploratory observational design.

View Article and Find Full Text PDF

Aim: This study aimed to examine the extent, range and variety of research in Europe describing healthcare interventions for older people with dementia (PwD) and family caregivers.

Methods: This was a scoping review and followed the PRISMA Scoping Review guideline. MEDLINE, CINAHL and Cochrane library databases were searched for studies published between 2010 and 2020.

View Article and Find Full Text PDF

Background: Families are introduced as new partners in interprofessional communication and collaboration during hospitalisation of an adult patient. Their introduction into the healthcare team has consequences for the roles and responsibilities of all healthcare professionals. Role clarification is thus needed to create optimal communication and collaboration with families.

View Article and Find Full Text PDF

Background: Acute admission to an intensive care unit (ICU) can negatively affect quality of life for patients and their relatives. Relatives play an important caregiving role after the patient's admission. More knowledge and understanding of their needs are necessary as the patient transitions home.

View Article and Find Full Text PDF

Background: The reliability and validity of the subjective component of the Dutch Objective Burden Inventory (DOBI) are unknown.

Objective: The validity and reliability of the subjective component of the DOBI were examined in caregivers of individuals with heart failure, using the original 38- and a 24-item version.

Methods: In an online cross-sectional investigation, confirmatory factor analysis was used to examine factorial validity.

View Article and Find Full Text PDF

Background: Family engagement in care for adult inpatients may improve shared decision making in the hospital and the competence and preparedness of informal caregivers to take over the care at home. An important strategy to involve family members in hospital care processes is to include them in (ward) rounds, also called 'family-centered rounds'(FCRs).

Objectives: Summarize the evidence regarding the added value of FCRs from the perspectives of patients, family, and healthcare professionals.

View Article and Find Full Text PDF

Objective: To describe the long-term functioning of patients who survived a COVID-19-related admission to the intensive care unit and their family members, in the physical, social, mental and spiritual domain.

Design: A single-centre, prospective cohort study with a mixed-methods design.

Setting: The intensive care unit of the University Medical Center Groningen in the Netherlands.

View Article and Find Full Text PDF

Background: Many older patients with cancer have their family members, often their adult children, involved in a process of treatment decision-making. Despite the growing awareness that family members can facilitate a process of shared decision-making, strategies for involving family members are scarce. Furthermore, literature about shared decision-making pays little attention to family involvement or to the impact that family relations have on the decision process.

View Article and Find Full Text PDF

Purpose: The COVID-19 pandemic caused rapid implementation and upscaling of video consulting. This study examined the perceived quality of care delivered through video consulting at a geriatric outpatient clinic, and how this related to adoption issues and barriers early adopting professionals found themselves confronted with.

Methods: We performed a qualitative study using semi-structured interviews with healthcare professionals complemented by the views of geriatric patients, family caregivers and medical secretaries.

View Article and Find Full Text PDF

Aims And Objective: To explore differences in nurses' attitudes regarding the importance of family in nursing care and factors associated with nurses' attitudes across 11 European countries.

Background: Family involvement in healthcare has received attention in many European healthcare systems. Nurses have a unique opportunity to promote family involvement in healthcare; however, their attitudes and beliefs may facilitate or impede this practice.

View Article and Find Full Text PDF

Background: Family members of patients treated with Extracorporeal Membrane Oxygenation (ECMO) during an Intensive Care Unit (ICU) stay are at risk of developing symptoms of anxiety, depression and Post-Traumatic Stress Disorder (PTSD). Coping strategies used by family members may play an important role in the severity of some of these symptoms.

Objectives: The primary aim of this study was to describe coping strategies used by family members of ECMO-treated patients during ICU admission and recovery period.

View Article and Find Full Text PDF

Background: In Europe, cardiovascular disease is one of the predominant causes of mortality and morbidity among older people over 65 years. The occurrence of cardiovascular disease can have a negative impact on the quality of life of older patients and their families and family health overall. Assuming that illness is a family affair shaped by culture and health care systems, we explored European health care practices and interventions toward families of older patients with cardiovascular disease and heart failure.

View Article and Find Full Text PDF

Many older patients with cancer depend on their family members for care and support and involve their family members in treatment decision-making in different stages of the cancer trajectory. Although family involvement is advocated in person-centered care, little is known about family involvement in decision-making specifically for older patients, and evidence-based strategies are scarce. The aim of this scoping review is to provide deeper understanding of factors influencing family involvement in treatment decision-making for older patients with cancer.

View Article and Find Full Text PDF

Background: Psychometric properties of the 38-item version of the Dutch Objective Burden Inventory (DOBI) have been evaluated primarily in older female caregivers, with no published studies that vary by a different gender and age distribution.

Objective: The aim of this study was to test the construct validity and reliability of the DOBI in caregivers of individuals with heart failure from the United States and other countries.

Methods: This secondary analysis from a cross-sectional study used an online survey.

View Article and Find Full Text PDF

Introduction: In Europe, cancer is one of the predominant causes of mortality and morbidity among older people aged over 65. A diagnosis of cancer can imply a negative impact on the quality of life of the older patients and their families. Despite research examining the impact of cancer on the family, it is unclear what kind of information is available about the types of clinical practice towards older patients with cancer and their families.

View Article and Find Full Text PDF
Article Synopsis
  • The study aimed to understand heart failure (HF) patients' self-care behaviors over a year, exploring the relationship between these behaviors and health outcomes, as well as identifying factors that influence changes in self-care.
  • Findings revealed that a significant portion of patients (48%) experienced declines in self-care, with only a small percentage showing improvement; those who improved had a stronger sense of perceived control.
  • The results suggested that psychological factors, including depression, played a role in self-care behavior and that targeted interventions could help improve patients' self-care and overall health outcomes.
View Article and Find Full Text PDF

Background: The Heart Failure Caregiver Questionnaire (HF-CQ) was developed to assess subjective outcomes of heart failure caregivers. The HF-CQ comprises 21 questions on three domains, namely physical, emotional/psychological and lifestyle. The objective of this study was to evaluate the psychometric properties of the HF-CQ.

View Article and Find Full Text PDF

Aim: To describe the partners' perspectives on participation in the care for patients with heart failure receiving home care.

Background: Partners are often involved in care of patients with heart failure and have an important role in improving patients' well-being and self-care. Partners have described both negative and positive experiences of involvement, but knowledge of how partners of patients with heart failure view participation in care when the patient receives home care is lacking.

View Article and Find Full Text PDF

Objectives: To investigate perceived sexual problems in a large group of younger and older patients with heart failure (HF), with and without a partner, focusing on a broad range of perceived sexual problems, and compare this with a sample of healthy community-dwelling elderly people.

Design: Cross-sectional study.

Setting: 17 HF clinics and general practices in The Netherlands.

View Article and Find Full Text PDF