Chronic Paradoxes: A Systematic Review of Qualitative Family Perspectives on Living With Congenital Heart Defects.

There have been substantial advances in the diagnostics and treatment of congenital heart defects (CHDs) in recent decades, and this has improved survival significantly. Consequently, there is a growing interest in how CHDs affect the daily lives of children and youth. We examine life with CHDs as a particular from the perspectives of both children and youth with CHDs and their families through a systematic review of existing qualitative research.

Living with a disability: a qualitative study of associations between social relations, social participation and quality of life.

Purpose: We explored which shared aspects of social relations were considered important to the quality of life of persons between the ages of 10 and 40 years living with a disability. We examined how social relations were experienced as affecting quality of life and social participation.

Materials And Methods: Fifteen focus groups involving 48 persons with disabilities were conducted using photo elicitation, preference ranking and props.