Publications by authors named "Maria Laura Requena"
Background: Research on concurrent parent and patient-reported outcomes has primarily focused on reaching agreement. However, little is known about how to interpret and address discrepancies, which are not uncommon, between both viewpoints.
Objectives: To explore parents' perspectives on reporting about child symptoms and quality of life (QoL) concurrently with their child in the context of pediatric advanced cancer.
Context: Electronic patient-reported outcomes (e-PROs) in pediatric oncology may be useful to track patients' symptoms and quality of life (QoL). However, implementation in the clinical setting is limited and few studies have examined child and parent perspectives on e-PRO usage.
Objectives: This brief report aims to explore child and parent perspectives on the benefits of using e-PROs to routinely report on symptoms and QoL.
Article Synopsis
- Children and young adults with advanced cancer face significant symptom distress, which is often underestimated by patients, parents, and healthcare providers.
- A study involving interviews and surveys highlighted that many involved in the care process have come to "normalize" high levels of symptom suffering, viewing it as an inevitable part of the illness.
- Overcoming this normalization is crucial for improving symptom management and reducing distress in pediatric cancer patients, indicating a need for new strategies in palliative care.
Context: There are no validated Spanish tools to assess symptom burden in pediatric cancer. The Pediatric Memorial Symptom Assessment Scale (Pediatric-MSAS) is an English valid multidimensional and comprehensive instrument.
Objectives: To validate Pediatric-MSAS-Spanish (MSAS-Child, MSAS-Teen, and MSAS-Caregiver versions) in patients with cancer treated in two public hospitals in Buenos Aires, Argentina.
Purpose Of Review: This article is aimed to review updated research on end-of-life care sedation (EOLC-S) for children and aspects surrounding this issue.
Recent Findings: Prevalence of EOLC-S for children may vary across countries on account of cultural differences, in terms of settings, legal issues and perceptions about EOLC-S, which lead to variation in patient selection and management. Although home is the preferred place of death for families, research shows hospital settings and ICUs to be the most frequent places where children die.