Pain and discomfort in children with gastrostomy tubes - In the context of hematopoietic stem cell transplantation.

Background: In children with malignant and severe non-malignant disorders undergoing hematopoietic stem cell transplantation (HSCT), treatment related pain and discomfort are common. Food consumption may become troublesome, making the use of a gastrostomy tube (G-tube) necessary and resulting in complications, why the purpose was to explore pain and discomfort during the transplantation and post-transplantation time.

Methods: This was a mixed methods study where data were collected along the child's total health-care process between 2018 and 2021.

Child health care nurses' experiences of language barriers during home visits.

Objective: The aim of the study was to explore the communication tools that child healthcare nurses can use during home visits to families when language barriers exist.

Design: Qualitative study using data collected from focus group sessions.

Sample: Six semi-structured focus group interviews with twenty nurses in child healthcare services.

Children's and adolescents' experiences of living with cancer.

Background All healthcare professionals working with children should have a child-centred perspective, and should be responsive to children and adolescents who want to talk about their thoughts and feelings. The child's or adolescent's story is the starting point for mutual understanding between them and the healthcare professional, and is the basis for shared decision-making between patients and healthcare professionals in child-centred care. Aim To advance understanding of how Swedish children and adolescents with cancer perceived the effects of the disease and its treatment on their everyday life.

Development of a web-based assessment tool that evaluates the meal situation when a child has a percutaneous endoscopic gastrostomy.

Background: Children with cancer often suffer side effects from their treatment, for example nausea and vomiting, which can lead to malnutrition. If a child cannot eat orally, a percutaneous endoscopic gastrostomy (PEG) can improve his or her well-being, psychosocial development and growth by enabling the supply of nourishment and facilitating the administration of necessary medicines. Few data exist on children's comfort when using a PEG.

Sibling Supporters' Experiences of Giving Support to Siblings Who Have a Brother or a Sister With Cancer.

Siblings of a child with a life-threatening disease, such as cancer, have a right to measures that promote their health and welfare. Siblings may find it hard to understand what is happening to the sick child with cancer and why he or she reacts as he or she does. The aim of the study was to explore sibling supporters' thoughts about the experiences they had in providing support for siblings with a brother or a sister with a life-threatening disease such as cancer.

The Recovery Process When Participating in Cancer Support and Rehabilitation Programs in Sweden.

The aim was to illuminate the meaning of participating in support and rehabilitation programs described by people diagnosed with cancer. Nineteen persons were interviewed in focus groups and face-to-face. Data were analyzed with a qualitative phenomenological hermeneutical method for researching lived experiences.

Building the Evidence for Nursing Practice: Learning from a Structured Review of SIOP Abstracts, 2003-2012.

Background: The focus of work submitted to an international conference can reflect the changing landscape of a specialty and prove important for identifying trends, uncovering gaps, and providing new directions for nurse-led research and clinical practice. We present an analysis of trends in presentations in the nursing program at the SIOP congress from 2003 to 2012 based on all accepted abstracts.

Procedure: A total of 462 abstracts were analyzed.

Young adults' childhood experiences of support when living with a parent with a mental illness.

There are several concerns in relation to children living with a parent suffering from a mental illness. In such circumstances, the health-care professionals need to involve the whole family, offering help to the parents on parenting as well as support for their children. These children are often helped by participating in meetings that provide them with contact with others with similar experiences.

Person-centred web-based support--development through a Swedish multi-case study.

Background: Departing from the widespread use of the internet in modern society and the emerging use of web applications in healthcare this project captures persons' needs and expectations in order to develop highly usable web recourses. The purpose of this paper is to outline a multi-case research project focused on the development and evaluation of person-centred web-based support for people with long-term illness. To support the underlying idea to move beyond the illness, we approach the development of web support from the perspective of the emergent area of person-centred care.