Publications by authors named "Margaret Storey"
Article Synopsis
- The project aimed to identify the needs and barriers faced by parents and providers in accessing home- and community-based services (HCBS) for children with disabilities (CWD), and to explore ways to enhance access to these services within pediatric healthcare settings.
- Semi-structured interviews and surveys were conducted with healthcare providers and parents to gather data, revealing that a majority of parents reported their child needed HCBS, but encountered various barriers including lack of provider knowledge and complicated entry requirements.
- The findings highlight the urgent need for pediatric healthcare institutions to adopt a comprehensive approach to address these barriers and improve access to essential HCBS for children with disabilities.
Objective: No validated tools exist to measure pediatric home healthcare quality. The objective of this work was to develop a family-reported survey (PediHome) to measure the quality of home healthcare for children with medical complexity (CMC).
Methods: A national multidisciplinary expert panel (N = 19) was convened to develop survey content domains.
Objective: Pediatric epilepsy is often associated with diminished health-related quality of life (HRQOL). Our aim was to establish the validity of the Pediatric Epilepsy Learning Healthcare System Quality of Life (PELHS-QOL-2) questions, a novel two-item HRQOL prompt for children with epilepsy, primarily for use in clinical care.
Methods: We performed a multicenter cross-sectional study to validate the PELHS-QOL-2.
Objective: Common data elements (CDEs) are standardized questions and answer choices that allow aggregation, analysis, and comparison of observations from multiple sources. Clinical CDEs are foundational for learning health care systems, a data-driven approach to health care focused on continuous improvement of outcomes. We aimed to create clinical CDEs for pediatric epilepsy.
View Article and Find Full Text PDFActivity intolerance and impaired physical mobility in elders.
Int J Nurs Terminol Classif
March 2006
Purpose: To clarify the use of two nursing diagnoses, activity intolerance and impaired physical mobility, with elderly patients.
Method: Ninety-two elders from a long-term care facility in Wonju, Korea. A checklist developed by the researchers was used for data collection.