Publications by authors named "Majorie Allen"
Despite improved survival rates for childhood cancer, around 60% of survivors suffer lifelong health problems due to their treatment, including fertility issues which account for one third of these problems. Ovarian or testicular tissue cryopreservation can be offered to patients whose cancer treatment puts them at high risk of subsequent subfertility, but it presents unique challenges compared to standard methods of fertility preservation. We report the available information on the experiences of cancer survivors who preserved tissue for future fertility, to support the development of survivorship care informed by recipients' perspectives and experiences to identify future research priorities.
View Article and Find Full Text PDFObjective: Clinical options for managing nonmetastatic prostate cancer (PCa) vary. Each option has side effects associated with it, leading to difficulty in decision-making. This study aimed to assess the relationship between patient involvement in treatment decision-making and subsequent decision regret (DR), and quantify the impact of health-related quality of life (HRQL) outcomes on DR.
View Article and Find Full Text PDFBackground: More men are living following a prostate cancer (PCa) diagnosis. They may need support to maximize the quality of their survival. Physical and psychological impacts of PCa are widely documented.
View Article and Find Full Text PDFBackground: Prostate cancer incidence, treatment, and survival rates vary throughout the UK, but little is known about regional differences in quality of survival.
Objective: To investigate variations in patient-reported outcomes between UK countries and English Cancer Alliances.
Design, Setting, And Participants: A cross-sectional postal survey of prostate cancer survivors diagnosed 18-42mo previously.
Background: Little is known about the health-related quality of life (HRQOL) of men living with advanced prostate cancer. We report population-wide functional outcomes and HRQOL in men with all stages of prostate cancer and identify implications for health-care delivery.
Methods: For this population-based study, men in the UK living 18-42 months after diagnosis of prostate cancer were identified through cancer registration data.
Article Synopsis
- The study aimed to assess the prevalence of urinary, bowel, and sexual dysfunction among men aged 40 and older in Northern Ireland, using survey data to establish a baseline for prostate cancer outcomes and service provisions.
- A survey of 10,000 men revealed that 32.8% experienced sexual dysfunction, 9.3% urinary dysfunction, and 6.5% bowel dysfunction, with 38.1% reporting at least one issue. Factors like age, long-term conditions, low physical activity, and unemployment were linked to these dysfunctions.
- The findings highlight significant health issues among elderly men that are often underreported but could be addressed through improved healthcare services, potentially leading to better health outcomes by
Background: Prostate cancer and its treatment may impact physically, psychologically and socially; affecting the health-related quality of life of men and their partners/spouses. The Life After Prostate Cancer Diagnosis (LAPCD) study is a UK-wide patient-reported outcomes study which will generate information to improve the health and well-being of men with prostate cancer.
Methods And Analysis: Postal surveys will be sent to prostate cancer survivors (18-42 months postdiagnosis) in all 4 UK countries (n=∼70 000).