Publications by authors named "Maisie McKenzie"

Background: Care home residents often lack access to end-of-life care from specialist palliative care providers. Palliative Care Needs Rounds, developed and tested in Australia, is a novel approach to addressing this.

Objective: To co-design and implement a scalable UK model of Needs Rounds.

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Patient and public involvement and engagement (PPIE) is an increasingly important component of research conduct to enhance processes and potential for impact, yet is rarely critically interrogated. This paper draws on Foucauldian analysis to highlight the disciplinary powers and tensions arising in PPIE. The paper draws on a nested evaluation interview study with three PPIE members and eight academics, who had been involved in an implementation science study focused on palliative care.

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Background: Realist evaluation aims to address the knowledge to practice gap by explaining how an intervention is expected to work, as well as what is likely to impact upon the success of its implementation, by developing programme theories that link contexts, mechanisms and outcomes. Co-production approaches to the development of programme theories offer substantial benefits in addressing power relations, including and valuing different types of knowledge, and promoting buy-in from stakeholders while navigating the complex social systems in which innovations are embedded. This paper describes the co-production of an initial programme theory of how an evidence based intervention developed in Australia - called 'Palliative Care Needs Rounds' - might work in England and Scotland to support care home residents approaching their end of life.

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Article Synopsis
  • The NIHR Policy Research Unit in Behavioural Science (PRU-BS) aims to use behavioral science insights to inform health and social care policies, requiring a diverse Participatory Public Involvement (PPI) group.
  • This paper discusses how the original PPI plan was adapted to address real-world challenges, particularly in the context of the Covid-19 pandemic.
  • It highlights the establishment and functioning of the PPI Strategy Group, emphasizes effective communication through virtual platforms, and shares lessons learned to assist others in similar scenarios.
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Introduction: Palliative and end-of-life care in care homes is often inadequate, despite high morbidity and mortality. Residents can experience uncontrolled symptoms, poor quality deaths and avoidable hospitalisations. Care home staff can feel unsupported to look after residents at the end of life.

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