Experiences of family members of cancer patients in palliative care: a qualitative systematic review protocol.

Objective: The objective of this review is to synthesize the experiences of family members of cancer patients in palliative care.

Introduction: Increasingly, palliative care is the approach advocated when a life-threatening illness has been diagnosed. Cancer patients and their families, when receiving early identification, correct assessment, and treatment of pain and other problems through palliative care, report feeling supported in their illness experience.

Communication of bad news in the context of neonatal palliative care: experience of intensivist nurses.

Objectives: To know the experiences of nurses in neonatal intensive care units in the face of the process of communicating bad news to the family of newborns in palliative care.

Methods: Study with a descriptive qualitative approach, in which 17 professionals participated. Data were collected through a semi-structured interview script, from December/2018 to February/2019, and submitted to content analysis.

Family experience living with advanced neoplasm: a glance at the rural population.

Objectives: to understand the experience of rural families living with advanced cancer, from Family Management Style Framework's perspective.

Methods: a qualitative research conducted in seven cities of the northern of state of Rio Grande do Sul in homes of 11 families (27 people). Data collection took place in 2014, using the genogram and narrative interview.

From hospitalization to grief: meanings parents assign to their relationships with pediatric oncology professional.

Objective: To understand the meanings assigned by bereaved parents to their relationships with healthcare professionals during the end-of-life hospitalization of their child.

Method: Qualitative-interpretative study based on hermeneutics. Data were collected from interviews with parents who were grieving the death of a child with cancer in the hospital and participant observation in an oncology ward.

Validation of Family Management Measure for the Brazilian culture.

Etjective: To validate the Family Management Measure (FaMM) for Brazilian culture.

Method: Quantitative research excerpt, following the recommendations for validation studies. The data presented refer to the last stage of the process.

(Un)receptiveness in interactions with professionals: experiences of parents of children with retinopathy of prematurity.

Objective: To analyze the influence of health professionals' receptiveness on parental care of children with retinopathy of prematurity (ROP).

Method: A qualitative study developed under the theoretical framework of Symbolic Interactionism and using a narrative research methodology. Six women and three men, being parents of children with retinopathy of prematurity were individually interviewed in depth.

The family's experience of the child and/or teenager in palliative care: fluctuating between hope and hopelessness in a world changed by losses.

Objectives: to understand the family's experience of the child and/or teenager in palliative care and building a representative theoretical model of the process experienced by the family.

Methodology: for this purpose the Symbolic Interactionism and the Theory Based on Data were used. Fifteen families with kids and/or teenagers in palliative care were interviewed, and data were collected through semi-structured interviews.

The practice of nurses caring for families of pediatric inpatients in light of Jean Watson.

Objective To know the facilities and the difficulties of nurses in caring practice of hospitalized children's families in the light of Jean Watson's Theory of Human Caring. Method It was used the descriptive qualitative approach. The data collection was conducted in three stages: presentation of theoretical content; engagement with families in the light of Watson's theory; and semi-structured interview with 12 pediatric nurses.

Cultural adaptation of the Family Management Measure among families of children and adolescents with chronic diseases.

Objectives: to perform the cultural adaptation of the Family Management Measure into the Brazilian Portuguese language.

Method: the method complied with international recommendations for this type of study and was composed of the following steps: translation of the instrument into the Portuguese language; reaching consensus over the translated versions; assessment by an expert committee; back translation; and pretest.

Results: these stages enabled us to obtain conceptual, by-item, semantic, idiomatic, and operational equivalences, in addition to content validation.

[Dignified death for children: perceptions of nurses from an oncology unit].

The objective of this study was to identify the meaning of dignified death and the interventions employed by nurses in pediatric oncology to promote dignified death for children. We used Symbolic Interaction Theory as the theoretical framework and narrative research methods. The data were collected from eight nurses in the pediatric oncology unit of a public hospital in Sao Paulo through semi-structured interviews.

Family management style framework and its use with families who have a child undergoing palliative care at home.

Palliative care settings in many countries acknowledge families as their prime focus of care, but in Brazil, to date, researchers have devoted scant attention to that practice setting. In this article, we report the findings of a study that explored how families define and manage their lives when they have a child or adolescent undergoing palliative care at home. Data included individual semistructured interviews with 14 family members of 11 different families.

The relationship between religion, illness and death in life histories of family members of children with life-threatening diseases.

This qualitative study aimed to get to know the relationship between the experiences of families of children with a life-threatening disease and their religion, illness and life histories. The methodological framework was based on Oral History. The data were collected through interviews and the participants were nine families from six different religions who had lived the experience of having a child with a life-threatening disease.

Managing cancer and its intercurrences: the family deciding to seek emergency care for the child.

This study aimed to understand how the family of a child with cancer manages the illness and its intercurrences at home, and how it makes the decision of taking the child to an emergency care service. Oral History was used as the methodological strategy and data analysis was based on the "Family Management Style Framework". Participants were six mothers between 28 and 47 years old, who were experiencing their child's cancer treatment.

[Emotional states of nurses in professional performance at intensive care units].

The aim of is study was to analyze the nurses' psychological variables taken firm Engelmann's List of Emotional States and based on the questionnaire answered by the subjects at the begining and end of each shift in different units of Hosptal das Clínicas, UNICAMP on the six-hour and twelve-hour schedules in activities developed at the surgical center (SC), Intensive Care Unit (ICU, Coronary Unit (CU) and Emergency Room (ER) with the averge age of 33.88 years old. The results allowed us to certify the nurses' emotional parameters have alterations during the shift which can be related to the burnout and stress of the care delivery activity, even more in units where it demands immediate answers kill and need on emergency.