Publications by authors named "Magdalena Sajak-Szczerba"
Background: As the therapeutic landscape for inflammatory bowel disease (IBD) continues to expand, a need exists to understand how patients perceive and value different attributes associated with their disease as well as with current and emerging treatments. These insights can inform the development and regulation of effective interventions for IBD, benefiting various stakeholders including healthcare professionals, drug developers, regulators, Health Technology Assessment bodies, payers, and ultimately patients suffering from IBD. In response to this, the present patient preference study was developed with the aim to (1) determine the relative preference weights for IBD treatment and disease related attributes, and (2) explain how preferences may differ across patients with different characteristics (preference heterogeneity).
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- Patients with Crohn's disease who also have perianal fistulas face additional complications like fecal incontinence, pain, and a higher treatment burden compared to those without these fistulas.
- A study involved 929 patients across three cohorts to assess their quality of life and treatment preferences using validated questionnaires and a discrete choice experiment.
- Results showed that patients with perianal fistulas experienced worse quality of life scores, and treatment choices were largely influenced by factors such as postoperative discomfort and the rate of fistula healing.
Background: There is a high variability of out-of-packet patient costs of inflammatory bowel diseases (IBDs), but the issue is not widely recognised. Therefore, we compared patient costs of IBDs between 12 European countries.
Methods: A questionnaire-based study was conducted among adult patients with IBD.
Background And Aims: As more therapeutic options with their own characteristics become available for inflammatory bowel disease [IBD], drug development and individual treatment decision-making needs to be tailored towards patients' preferences and needs. This study aimed to understand patient preferences among IBD patients, and their most important treatment outcomes and unmet needs.
Methods: This qualitative study consisted of [1] a scoping literature review, [2] two focus group discussions [FGDs] with IBD patients [n = 11] using the nominal group technique, and [3] two expert panel discussions.
Background: National studies report a high variability of indirect costs of inflammatory bowel disease (IBD). In this study, selected aspects of the societal burden of IBDs were compared between 12 European countries.
Methods: A questionnaire-based study among adult patients with IBD was performed.