Publications by authors named "Maddison Wiggins"
Young-onset dementia: A systematic review of the psychological and social impact on relatives.
Patient Educ Couns
February 2023
Article Synopsis
- Young-onset dementia (YOD) not only affects those diagnosed but also poses significant psychological and social challenges for their families, especially for biological relatives who face a higher genetic risk.
- A systematic review of empirical studies revealed that most research focuses on the experiences of children with a parent suffering from YOD, identifying themes such as disruption of family dynamics, profound emotional turmoil, uncertainty about the future, lack of support, and various coping strategies.
- The study emphasizes that while the effects on relatives are substantial, their needs often go unrecognized, and suggests a framework for addressing these challenges in genetic counseling practices.