Favourable outcome in 135 children with juvenile systemic sclerosis: results of a multi-national survey.

Objective: To increase the current knowledge of the outcome of juvenile systemic sclerosis (jSSc), which is currently limited.

Methods: In order to investigate the patient outcome and prognostic factors, starting October 1994, we distributed questionnaires to 324 paediatric rheumatology centres.

Results: Until 15 May 1998 responses from 46 centres were received, 34 of which returned completed questionnaires on a total of 135 patients.