Publications by authors named "M Landolt"
Article Synopsis
- The study investigates healthcare access for Swiss adults with rare diseases, aiming to find patterns and their effects on health-related quality of life (HRQoL).
- Utilizing surveys from 341 participants, two groups were identified: those with high access (227 individuals) and those with low access (114 individuals).
- Factors linked to lower access included unstable disease conditions, higher misdiagnoses, and neurological diseases, which also correlated with poorer HRQoL, underscoring the need for improved healthcare strategies.
Little is known about the naturalistic course of posttraumatic cognitions (PTCs) after exposure to a potentially traumatic event (PTE) in children and adolescents. Moreover, previous studies on the longitudinal associations of PTCs with internalising symptoms yielded mixed results. To explore the naturalistic courses and longitudinal associations of dysfunctional PTCs and functional PTCs with posttraumatic stress symptoms (PTSS), depression, and anxiety.
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- Children and adolescents with Pompe disease (PD) experience significant myopathy that requires intensive enzyme replacement therapy (ERT), but little is known about their views on the disease and treatment.
- A study involving interviews with 11 pediatric patients and 26 caregivers highlighted diverse perceptions of symptoms and their social impacts, showing that even mild limitations can be frustrating for patients.
- Participants generally felt relieved by the transition from hospital to home-based ERT, emphasizing improvements in daily life and emotional well-being, although their emotional responses varied widely.
Objective: Children and adolescents with rare diseases face significant barriers when accessing healthcare. We aimed to assess and predict these barriers and investigate associations with health-related quality of life (HRQoL).
Method: We conducted a cross-sectional survey of Swiss parents (N = 189) of children with rare diseases including the Barriers to Care Questionnaire (BCQ), containing six barriers and the Pediatric Quality of Life Inventory (PedsQL).
Objective: The way in which parental posttraumatic stress symptoms (PTSS) unfold in the first year after a cancer diagnosis in their child is poorly understood. The aims of this study were to identify parental PTSS trajectories and to examine couple-related predictors (dyadic coping and we-disease appraisals), sociodemographic predictors (education and sex), and medical predictors (child's physical impairment) of trajectory membership.
Method: A 1-year prospective study was conducted, and 157 parents of children newly diagnosed with cancer were assessed.