Publications by authors named "M Dejonckheere"
Background: Black people have disproportionately high morbidity and mortality due to systemic lupus erythematosus (SLE). Features of social and occupational environments can protect against poor health outcomes.
Objective: We aimed to characterize how SLE intersects with interpersonal relationships and employment among Black adults to inform tailored care approaches and public policies that could alleviate racial inequities in SLE.
Introduction: Acute severe ulcerative colitis (ASUC) is a life-treating presentation of ulcerative colitis (UC) that requires prompt initiation of treatment to avoid complication. Unfortunately, outcomes for ASUC are suboptimal, with as many as 20-30% of patients requiring colectomy. This can be challenging for patients and highlights the need to understand patient experiences and perspectives navigating ASUC.
View Article and Find Full Text PDFAims: Beyond causing physical discomfort, overactive bladder (OAB) is distressing to patients across a variety of psychosocial domains. In this qualitative component of a larger mixed methods study, we explore patients' lived experience with OAB to understand how this condition impacts individuals on a personal and social level, as well as their experiences interacting with the health care system.
Methods: A total of 20 patients and 12 physicians completed a questionnaire and semi-structured interview.
Article Synopsis
- The CAPTURE-IBD intervention, which includes remote monitoring of patient-reported outcomes and coordinated care, proved to be more effective in reducing symptom burden for IBD patients compared to standard care.
- Interviews with patients and care providers revealed that while the intervention was generally well-received and seen as helpful, there were concerns about increased workloads for nurses and underutilization of the care coordinator role.
- Enhancements are needed to better address daily symptom fluctuations and the specific needs of patients with other health issues, signaling that future versions of CAPTURE-IBD should be tailored for different clinical environments.
Purpose: The purpose of this study was to describe the frequency of psychosocial risk and its associations with glycemic levels in youth with type 1 diabetes (T1D) seen by social work staff during regular clinical care.
Methods: A retrospective longitudinal analysis of observational clinical data was conducted. Individuals (1-26 years) with known T1D who were seen at a pediatric diabetes clinic in a US academic medical center between 2014 and 2021 were included.