Self-management: Enabling and empowering patients living with cancer as a chronic illness.

With recent improvements in the early detection, diagnosis, and treatment of cancer, people with cancer are living longer, and their cancer may be managed as a chronic illness. Cancer as a chronic illness places new demands on patients and families to manage their own care, and it challenges old paradigms that oncology's work is done after treatment. As a chronic illness, however, cancer care occurs on a continuum that stretches from prevention to the end of life, with early detection, diagnosis, treatment, and survivorship in between.

A new self-report measure of self-management of type 1 diabetes for adolescents.

Background: The development of instruments to measure self-management in youth with type 1 diabetes has not kept up with current understanding of the concept.

Objective: This study aimed to report the development and the testing of a new self-report measure to assess the Self-Management of Type 1 Diabetes in Adolescents (SMOD-A).

Methods: Following a qualitative study, items were identified and reviewed by experts for content validity.

Determining content validity of a self-report instrument for adolescents using a heterogeneous expert panel.

Background: The use of experiential experts, especially children and adolescents, in content validity evaluations of new instruments has not been described well.

Objective: To describe the use of experiential experts in a content validity evaluation of a new instrument.

Methods: Experiential (adolescents and parents, n = 11) and professional (diabetes clinicians and researchers, n = 17) expert judges evaluated the content validity of a new instrument that measures self-management of Type 1 diabetes in adolescents.

Changing patterns of self-management in youth with type I diabetes.

Self-management of type I diabetes is key to good physical and psychosocial outcomes of the disease, yet little is known about how youth and their parents share responsibility for illness management. This study describes the division of labor between youth and their parents, self-management conflict, and three patterns of self-management in youth across four developmental stages: preadolescence, early adolescence, mid-adolescence, and late adolescence. Twenty-two youth (8-19 years) with type I diabetes and one of their parents were interviewed using semistructured interviews.

A review of measures of self-management of type 1 diabetes by youth and their parents.

Purpose: The purpose of this paper was to identify and critique relevant existing instruments designed to measure self-management of type 1 diabetes in children and adolescents.

Methods: Literature on the self-management of type 1 diabetes in children and adolescents was systematically searched to identify instruments measuring self-management. After eliminating instruments that measured only one aspect of self-management, those published prior to DCCT findings, and those for which little information was available, 6 instruments were identified for review.

Ten things I learned while writing my last research grant.

There are nurses in numerous roles today fulfilling their professional responsibilities by engaging in a variety of clinical, educational, administrative and research activities. Nurse researchers strive to develop the knowledge base that nurse clinicians use in practice, and their synergistic efforts contribute toward continuously improving patient care. For nurse clinicians, the daily pursuit of excellence is evidenced in their rewards for exemplary clinical performance; for nurse researchers, receiving recognition and funding from the National Institutes of Health (NIH) is the hallmark of their accomplishments.

The concept of self-management of type 1 diabetes in children and adolescents: an evolutionary concept analysis.

Aim: An evolutionary concept analysis was undertaken to clarify the concept of self-management of type 1 diabetes in children and adolescents.

Background: Several problems exist in the literature on self-management of type 1 diabetes in children and adolescents. There is no uniform terminology and there is no uniform definition of the concept.