Publications by authors named "Lynette Bortey"
Ann Rheum Dis
October 2024
Article Synopsis
- Some experts and patients worked together to create a set of important data to help study childhood lupus, a disease that affects children.
- They made two datasets: a Core Dataset with 46 necessary items and an Expanded Dataset with 26 extra items, to help gather more information.
- This new information will help researchers around the world study childhood lupus better by using the same important facts and details.
Article Synopsis
- An international Task Force of specialists convened to develop a 'treat-to-target' (T2T) approach for improving care in childhood-onset systemic lupus erythematosus (cSLE) through expert consensus and systematic literature review.*
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- The Task Force established four key principles and fourteen important considerations emphasizing shared decision-making with patients and caregivers, aiming for full remission, prevention of flare-ups, and addressing health-related quality of life factors.*
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- This consensus framework for T2T in cSLE is expected to guide future strategies and research, gaining support from the Paediatric Rheumatology European Society.*
