Publications by authors named "Lucia Alacan Friedrich"
Background: Textbook outcome (TO) is a multidimensional measure used to assess the quality of surgical practice. It is a reflection of an "ideal" surgical result, based on a series of benchmarks or established reference points that may vary depending on the pathology in question. References to TO in the literature are scarce, and the few reports that are available were all published very recently.
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- Most patients with hemoglobinopathies have a strong desire for parenthood, with 75.9% expressing this wish, regardless of demographic factors.
- Fertility counseling and testing are often overlooked, as only 28.8% of patients recalled receiving counseling and 11.6% remembered undergoing fertility testing.
- There is a significant gap in fertility preservation utilization, with only 5.4% of patients taking advantage of available options, highlighting the need for improved patient education and counseling on fertility risks.
CCS often wish to have biological children yet harbour concerns about fertility impairment, pregnancy risks and the general health risks of prospective offspring. To clarify these concerns, health outcomes in survivor offspring born following ART (n = 74, 4.5%) or after spontaneous conception (n = 1585) were assessed in our European offspring study by descriptive and bivariate analysis.
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