Patients' views on improving sickle cell disease management in primary care: focus group discussion.

Objectives: To assess sickle cell disease (SCD) patient and carer perspectives on the primary care services related to SCD that they receive from their general practitioner (GP).

Design: A focus group discussion was used to elicit the views of patients about the quality of care they receive from their primary health-care providers and what they thought was the role of primary care in SCD management. The focus group discussion was video recorded.

Antenatal screening for haemoglobinopathies in primary care: a whole system participatory action research project.

Background: The usual system for antenatal screening for haemoglobinopathies permits termination only late in the second trimester of pregnancy.

Aim: To evaluate a system where pregnant women are screened in general practice, and to develop a model of care pathway or whole system research able to bring into view unexpected effects of health service innovation.

Design Of Study: A whole system participatory action research approach was used.