Embracing Asymmetry and Humility in the Face of Disability.

In "The Relational Potential Standard," in this issue of the Hastings Center Report, Aaron Wightman and colleagues propose "relational potential" as an addition to existing standards that are employed in making difficult decisions regarding life-sustaining treatment for children with profound cognitive disabilities. They offer compelling explanations for why the expanded standard is important and why an approach grounded in an ethics of care is both necessary and justified. In what follows, I would like to explore asymmetries that emerge from their account: between clinician and parent and between child and parent.

Research ethics and intellectual disability: broadening the debates.

This article examines the ethical issues surrounding the inclusion of people with intellectual disabilities as research subjects. It explores subject selection, competence, risk and benefits, and authority through three tensions that emerge when considering these concepts in the context of the Disability Rights Movement and critical disability scholarship. These tensions are defined as the double dangers of inclusion and exclusion; the challenges of defining competence and risk in terms of individuals vs.

Philosophical perspectives on response shift.

Purpose: This paper brings a philosophical perspective to response shift research with the aim of raising new critical questions, clarifying some of the concepts employed, and providing a philosophical context within which to critically examine the assumptions that shape the field.

Methods: This critical analysis aims to reveal assumptions and clarify concepts and/or definitions that undergird methodological practice and theory.

Results: We bring attention to the distinction of weak and strong evaluations, and the implications and consequences for construct validity and for designing patient-reported outcome measures (PROMs).