Community researchers are laypersons who conduct research activities in their own communities. In addiction and HIV research, community researchers are valued for their insider status and knowledge. At the same time, their presence on the research team raises concerns about coercion and confidentiality when community researchers and participants know each other personally, and the work of navigating between the worlds of research and community leads to moral distress and burnout for some community researchers.
View Article and Find Full Text PDFSoc Psychiatry Psychiatr Epidemiol
November 2012
Purpose: In order to understand the nature of the therapeutic alliance in intensive case management, this study used qualitative methods to assess the dynamics of the case managers' relationships with their consumers by examining their perspectives on their own and their consumers' likeability, how helpful consumers perceive them to be, as well as their expectations for their relationships with their consumers.
Methods: The study employed content analysis of open-ended responses from 49 intensive case managers about their consumers.
Results: From case managers' responses, four themes emerged describing the dynamics of the case manager/consumer relationship: motivation, monitoring, creating dependency, and being there.
J Empir Res Hum Res Ethics
June 2011
There has been little empirical research into misconduct and misbehavior among community research workers who recruit and collect data in vulnerable and marginalized health populations and are also members of those same communities. We conducted qualitative interviews with community research workers and traditional research assistants to understand the context and consequences of misbehaviors that pose a threat to research ethics and data integrity. In our sample, more community research workers acknowledged engaging in research wrongdoing than did traditional research assistants.
View Article and Find Full Text PDFTopic: This article examines the issue of parenting with a psychiatric disability and the risk of custody loss for these parents.
Purpose: The purpose of this article is to examine the parental rights of parents with psychiatric disabilities and the use of the Americans with Disabilities Act as a legal defense. The current status of the law on terminating parental rights for people with mental illnesses is reviewed and the use of the ADA as a defense is described.
Adm Policy Ment Health
July 2006
This study explores early alliance formation between adult consumers with schizophrenic-spectrum disorders and their case managers from the consumers' perspectives using a prospective, cohort design. While quantitative studies have demonstrated positive links between the alliance and some client outcomes, such methods cannot reveal in concrete and authentic ways what consumers want in the case management relationship. This study finds that consumers can provide tangible and insightful information about the specifics of their case management relationships, confirming previous findings about the desire for connection with others, while extending it to include the desire for connection to the social world through the case manager relationship.
View Article and Find Full Text PDFFindings are presented from a pilot study to determine the reliability, relevance, and feasibility of child and adult versions of the Working Alliance Inventory, adapted from psychotherapy research for use in the management of chronic childhood hematologic disorders. Thirty-four children, 13 adolescents, 43 parent/guardians, and 4 health-care providers participated. The adapted scales, called the Working Alliance Inventories for Chronic Care, had strong internal consistencies for all versions; retest reliabilities were generally acceptable.
View Article and Find Full Text PDFDramatic increases in same-race adoptions of African American children have stimulated interest in the experiences of these families, including those related to disclosure. Data from interviews with 27 African American adoptive parents (7 mothers and fathers interviewed conjointly, 13 mothers interviewed alone) from 20 different families revealed the following themes: (a) efforts to prevent trauma to the child; (b) respect for the child's differentness and birth history; (c) developmental decisions in disclosure; (d) children's questions as motivations for disclosure; and (e) parents' feelings about disclosure. Findings confirm the importance of psychoeducation regarding methods and timing of disclosure and provide support for comparative research on contemporary disclosure, including racial differences in process and content.
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