Choosing the harder road: Naming the challenges for families in person-centred planning.

Person-centred planning (PCP) has underpinned disability service provision in many Western countries for the past 30 years. For many people with an intellectual disability, family members are central to this process and are important allies in facilitating positive change. This article presents findings from an evaluation of a family resourcing and capacity building project in New South Wales (NSW), Australia.

Crafting and retelling everyday lives--disabled people's contribution to bioethical concerns.

This commentary draws out themes from the narrative symposium on "living with the label "disability"" from the perspective of auto/biography and critical disability studies in the humanities. It notes the disconnect between the experiences discussed in the stories and the preoccupations of bioethicists. Referencing Rosemarie Garland-Thompson's recent work, it suggests that life stories by people usually described as "disabled" offer narrative, epistemic and ethical resources for bioethics.

It's just too hard! Australian health care practitioner perspectives on barriers to advance care planning.

This article presents findings from six focus groups with health care practitioners in an Australian hospital during 2010, which sought to elicit their perspectives on the barriers for people to plan their future health care should they become unwell. Such knowledge is invaluable in overcoming the barriers associated with advance care planning and enhancing the uptake of advance directives and the appointment of an enduring power of attorney for people of all ages. A person's rights to self-determination in health care, including decision making about their wishes for future care in the event they lose cognitive capacity, should not be overlooked against the backdrop of increasing pressure on health care systems.

Preventing abuse in accommodation services: from procedural response to protective cultures.

This article reviews current approaches of disability accommodation services to addressing the abuse and neglect of people with intellectual disability who live in them. We review international literature and provide practice examples from accommodation services for people with intellectual disability in Australia to develop a framework of current research, policy and practice in this area. The results of this review show that dominant policy and practice approaches do not give adequate consideration to the prevention and protection of people from harm, focusing primarily on responding to individual instances of maltreatment.

A qualitative study of the transition from hospital to home for individuals with acquired brain injury and their family caregivers.

Primary Objective: To explore the transition experiences from hospital to home of a purposive sample of individuals with acquired brain injury (ABI).

Research Design: Phenomenological, qualitative design.

Methods And Procedures: Semi-structured interviews were conducted with 13 individuals with ABI (mean time since discharge = 15.

Email-facilitated qualitative interviews with traumatic brain injury survivors: a new and accessible method.

Primary Objective: To trial the method of email-facilitated qualitative interviewing with people with traumatic brain injury (TBI).

Research Design: Qualitative semi-structured email-facilitated interviews.

Procedures: Nineteen people (17 severe diagnosis) with a TBI participated in email interviews.