Features of Menstruation and Menstruation Management in Individuals with Rett Syndrome.

Study Objective: To describe features of menstruation, menstrual-related symptoms, and menstrual management in females with Rett syndrome (RTT) to help develop a clinical approach to these parameters in RTT.

Design: Retrospective cross-sectional chart review and prospective survey.

Setting: Cincinnati Children's Hospital Medical Center, Rett Syndrome and Related Spectrum Disorders Clinic.

Well-woman care and HPV vaccination rates in women with Rett syndrome.

Background: Lifespan has increased in individuals with Rett syndrome (RTT), but little is currently known about the provision of well-woman care to these individuals.

Objective: To collect data on well-woman examinations and human papillomavirus (HPV) vaccination rates in women with RTT to understand the current state of women's healthcare in individuals with RTT.

Methods: A retrospective cross-sectional chart review and prospective survey of 77 patients with Rett syndrome who were cared for at a single specialty clinic over five years was conducted to collect data on women's health examinations and HPV vaccination rates.