Parent and adolescent perceptions of cystic fibrosis management responsibility: A mixed-methods study.

Background: Adolescents with cystic fibrosis (CF) and their parents must navigate changing roles and responsibilities within the family including transfer of disease management responsibilities.

Aim/objective: The aim of this qualitative study was to explore how families share and transfer CF management responsibility from the perspectives of adolescents with CF and their parents.

Methods: Guided by qualitative descriptive methodology, we purposively sampled adolescent/parent dyads.