Publications by authors named "Laura Postma"
Article Synopsis
- Involving children and young people (CYP) in developing pediatric research agendas (PRAs) is increasingly recognized as important, yet the actual impact of their involvement is not fully understood.
- A qualitative study with interviews highlighted three main areas of impact: agenda-setting, individual growth, and the need for academic insights, although the latter was less clearly defined by participants.
- There is a call for better strategies to measure and maximize the positive outcomes from CYP involvement in research, stressing the importance of planning post-patient and public involvement (post-PPI) activities.
Objective: The objective of this study is twofold: first, to describe the methods used when involving children and young people (CYP) in developing a paediatric research agenda and, second, to evaluate how the existing literature describes the impact of involving CYP. We distinguish three forms of impact: impact on the research agenda (focused impact), impact on researchers and CYP (diffuse impact) and impact on future research (research impact).
Design: A narrative review of MEDLINE, PsycINFO, Web of Science and Google Scholar was conducted from October 2016 to January 2022.
Background: A growing trend in research is to involve co-researchers. It is referred to as Patient and Public Involvement (PPI) and comprises three groups: the patients, the public, and the researchers. Like in adult public involvement, healthy children can also be considered as 'the public'.
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