Publications by authors named "L van de Poll-Franse"
Introduction: Health-related quality of life (HRQoL) is emerging as an endpoint, adjunct to survival, in cancer treatment. For this reason, the European Organization for Research and Treatment of Cancer (EORTC) has developed standardized quality-of-life questionnaires to collect patient-reported outcome measurement (PROM), which so far have been widely used in clinical trials to evaluate the impact of new drugs on cancer patients. However, while these questionnaires comprehensively describe patient functions, little is known about their association with patient characteristics.
View Article and Find Full Text PDFHealth related quality of life (HRQoL) is increasingly assessed in oncology research and routine care, which has led to the inclusion of HRQoL in prediction models. This review aims to describe the current state of oncological prediction models incorporating HRQoL. A systematic literature search for the inclusion of HRQoL in prediction models in oncology was conducted.
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- Many patients with advanced cancer are initially unaware of their limited prognosis, but awareness increases significantly in the last year of life, rising from 15% to 40%.
- The study involved 801 deceased patients who completed follow-up questionnaires, revealing that most changes in prognosis perception occur in the last 6 months of life.
- Understanding their prognosis can encourage patients to engage in end-of-life discussions, emphasizing the need to explore individual preferences for care, even if some prefer not to know their prognosis.