Publications by authors named "L van Zuylen"
Background: Outcome measurement is essential to progress clinical practice and improve patient care.
Aim: To develop a Core Outcome Set for best care for the dying person.
Design: We followed the Core Outcome Measures in Effectiveness Trials (COMET) Initiative guidelines, which involved identifying potential outcomes via a systematic literature review (n = 619 papers) and from participants in the "iLIVE" project (10 countries: 101 patients, 37 family members, 63 clinicians), followed by a two-round Delphi study, and a consensus meeting.
Article Synopsis
- * Six focus groups with 16 patients were conducted to understand their experiences and coping mechanisms to find meaning following their treatment.
- * Four key themes emerged: reliance on existing meaning sources, distress from impacted sources, the search for new meanings, and utilizing adapted sources, indicating that enhancing awareness of these sources could support patients in their recovery process.
Grief is a normal reaction after the death of a loved one. Death rituals are an integral part of the mourning processes. Not being able to carry out death rituals can affect relatives' quality of life.
View Article and Find Full Text PDFContext: Medications may become inappropriate for patients in the last phase of life and may even compromise their quality of life.
Objective: To find consensus on recommendations regarding deprescribing of medications for adult patients with a life expectancy of six months or less.
Methods: Experts working in palliative care or other relevant disciplines were asked to participate in this international Delphi study.
Article Synopsis
- A descriptive study aimed to analyze pregnant women with cancer who died during pregnancy, delivery, or within the first year postpartum, using data from the International Network on Cancer, Infertility and Pregnancy (INCIP) registry.
- Out of 2,359 registered women, 131 (5.6%) experienced maternal mortality, with lung, gastro-oesophageal cancer, and acute leukaemia showing the highest mortality rates.
- The findings indicated that maternal mortality was linked to fewer live births, more elective caesarean sections, and earlier deliveries, resulting in an increased incidence of preterm births.