A public health priority is the increasing number of persons with Parkinson's disease (PwP), and the need to provide them with support. We sought to synthesize the experiences of relatives or friends-family caregivers-who provide such support. This study was a scoping literature review modeled by the PRISMA guidelines.
View Article and Find Full Text PDFThe proliferation of AI-powered bots and sophisticated fraudsters poses a significant threat to the integrity of scientific studies reliant on online surveys across diverse disciplines, including health, social, environmental and political sciences. We found a substantial decline in usable responses from online surveys from 75 to 10% in recent years due to survey fraud. Monetary incentives attract sophisticated fraudsters capable of mimicking genuine open-ended responses and verifying information submitted months prior, showcasing the advanced capabilities of online survey fraud today.
View Article and Find Full Text PDFCaregivers with an autistic child often experience stigma, which can lead to detrimental mental health consequences. Affiliate stigma is the internalization of, and psychological responses to, stigma experienced due to an individual's association with a person who is stigmatized. Social support has been shown to mediate the relationship between affiliate stigma and depression in caregivers of special needs children.
View Article and Find Full Text PDFPurpose: Although participating in research is often presented as something that can 'help others in the future', research participants may also benefit from accessing and understanding their own research data. However, participant attitudes toward receiving individual data via research reports are under researched. This study examined participant perceptions of research reports within the context of the pilot phase of the Pediatric Autism Research Cohort (PARC) Study.
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