Publications by authors named "L Macauley"
Introduction: Inequitable access to health care based on demographic factors such as ethnicity, socioeconomic status and geographical location has been consistently found in children with chronic kidney disease (CKD). However, little is known about the perspectives of caregivers on accessing health care. We described caregivers' perspectives on accessing health care for children with CKD from socioeconomically disadvantaged backgrounds and/or rural or remote areas.
View Article and Find Full Text PDFArticle Synopsis
- Patient navigators help adult patients navigate complex health systems, aiming to improve access and health outcomes; this study focused on the effects of such a program for children with chronic kidney disease (CKD).
- In a multi-center trial, children with CKD from low socioeconomic backgrounds were randomly assigned to receive immediate patient navigation or waitlisted for six months.
- Results showed no significant difference in self-rated health between the two groups after six months, but caregivers reported gaining skills for better care coordination and support despite some challenges in the process.
Background: Children and young people affected by kidney failure experience complexities in their care. Little is known about the unique needs of this young patient population group living with a long-term condition.
Objective: A meta-aggregation of all qualitative studies was conducted to identify experiences of supportive care among children and young people living with kidney failure.
Introduction: Needle-related distress is common among people receiving hemodialysis and affects quality of life and treatment decisions, yet little evidence exists to guide management. This study explored patients' experiences of needle-related distress to inform the development of prevention, identification, and management strategies.
Methods: Semistructured interviews concerning dialysis cannulation, needle-related distress, and potential solutions were conducted with people with current or recent experience of hemodialysis ( = 15) from a tertiary hospital-based service.
Nephrology nurses struggle to support patients on hemodialysis who experience needle fear due to absence of adequate programs or guidelines. Therefore, we have designed an educational intervention for nurses to learn techniques and strategies to support patients with needle fear and review best cannulation practices with minimal trauma to improve patients' experience of dialysis. A pre-post design measured self-reported confidence in nurses' ability to support patients on dialysis who have a fear of needles.
View Article and Find Full Text PDF