Symptom Documentation in Unstructured Palliative Care Notes of Children and Adolescents with Cancer.

Context: Children and adolescents with cancer experiencing complex symptoms can benefit from subspeciality palliative care. However, standardized methods of symptom documentation by pediatric palliative care teams are lacking. Understanding current approaches to symptom documentation will inform next steps to optimize symptom support.

The role of autologous bone in cranioplasty. A systematic review of complications and risk factors by using stored bone.

Background: Autologous bone cranioplasty is associated with a high complication rate, particularly infections and bone resorption. Although there are studies on the incidence and risk factors for complications following autologous bone cranioplasty, the study design is typically limited to retrospective analysis with multiple statistical explorations in small cohorts from single centers. Thus, there is a need for systematic analysis of aggregated data to determine the rate and risk factors for cranioplasty complications.

Usability Evaluation of the Revised Symptom Assessment App: Perspectives of Children and Parents.

Background: The symptom reporting app was co-designed with school-age children with cancer, their parents, and clinicians. Preliminary studies demonstrated its feasibility and acceptability; however, children and parents identified the need for additional refinements.

Methods: Guided by the Technology Acceptance Model and principles of user-centered design, this study supported refinements to the user interface and evaluation of its usability.

Research Priorities of the Oncology Nursing Society: 2024-2027.

Problem Statement: To define the Oncology Nursing Society Research Agenda for 2024-2027.

Design: An iterative, multiple data sources consolidation through the Research Agenda Project Team.

Data Sources: Previous research priorities, literature review, stakeholder survey, and research priorities from other cancer care organizations and funding agencies.

Non-Fungible Tokens for Organoids: Decentralized Biobanking to Empower Patients in Biospecimen Research.

Introduction: Scientists use donated biospecimens to create organoids, which are miniature copies of patient tumors that are revolutionizing precision medicine and drug discovery. However, biobanking platforms remove donor identifiers to protect privacy, precluding patients from benefiting from their contributions or sharing information that may be relevant to research outcomes. Decentralized biobanking (de-bi) leverages blockchain technology to empower patient engagement in biospecimen research.