Publications by authors named "Kyle Mcguffin"
Introduction: A guiding principle behind the development and deployment of the REDCap data management platform has always included attention to workflow design that allows easy implementation of best practices for clinical and translational researchers. CDISC standards such as CDASH have helped the clinical research community improve the efficiency, actionability, and quality of their clinical trials data, but have had limited uptake among the academic institutions.
Objective: To create a scalable methodology to convert CDISC CDASH eCRF instrument metadata into REDCap data dictionaries for the purpose of simplifying adoption and use of CDASH instruments by research teams across the REDCap Consortium.
Article Synopsis
- Financial incentives can influence recruitment for clinical trials, but there's limited understanding of how participants' perceptions of risk and burden affect their preferences for these incentives.
- A study was conducted in two phases: an Anchoring Survey to quantify perceived unpleasantness of life events, and a Vignette Experiment to examine the relationship between financial incentives and willingness to participate based on risk/burden levels.
- Results showed that the offered financial incentives and perceived risk were key factors in willingness to participate, and a framework for assessing participant risk perceptions was effectively developed for future recruitment strategies.