A semi-standardized music therapy intervention for girls with Rett syndrome: A descriptive essay.

Rett syndrome (RTT) is a severe neurodevelopmental disorder resulting in a wide range of functional impairments and therefore greatly impacts the lives of both patients and their families. While genetic and medical aspects have been studied for several decades, rehabilitation intervention research is still in its infancy. In this study, the investigating researchers have presented a rehabilitative framework by using music therapy for girls with RTT.

Parenting girls with Rett syndrome: An investigation on self-perceived levels of stress.

Background: Although lives of parents of girls with Rett syndrome (RTT) are centred on the process of care, in the current literature their perceived levels of stress have been rarely investigated.

Methods: We analysed levels of stress in a sample of 79 fathers and mothers parenting girls with RTT, who were required to compile the Parenting Stress Index (PSI) questionnaire.

Results: We found clinical levels of stress in about 39% of fathers, as compared with 44% of the mothers.

Parents' perception of health care services for girls with Rett syndrome.

Background: Rett syndrome (RTT) is a severe neurodevelopmental disorder, implying impairment and disability across several domains.

Method: We investigated parents' perception of the caregiving process in a sample of 55 mothers and fathers of girls with RTT using the MPOC-20 questionnaire. The association of parents' satisfaction with clinical variables has also been explored.