Publications by authors named "Kristy Steinau"
Physiotherapy for epidermolysis bullosa: clinical practice guidelines.
Orphanet J Rare Dis
September 2021
Article Synopsis
- * A clinical practice guideline (CPG) was developed to provide effective physiotherapy interventions based on a survey of the EB community, focusing on essential outcomes like motor milestones and safe mobility.
- * A group of healthcare professionals and community members collaboratively reviewed literature and formulated recommendations, aiming to enhance physiotherapy service quality and improve functional independence for those living with EB globally.