Background: Although the vast majority of medical cannabis laws in the USA includes cancer as a qualifying condition and medical cannabis-related stigma influences decision-making regarding the botanical, few studies have explored the phenomenon in oncology. Early findings indicated oncologic cannabis-related stigma to be quite widespread.
Methods: Semi-structured interviews with 24 adults with cancer histories using medical cannabis were analyzed using the Health Stigma and Discrimination Framework.
The study describes patient-reported experiences and recommendations to improve the genetic counseling and multigene panel testing (MGPT) process. A descriptive mixed-method study with concurrently collected and integrated qualitative and quantitative data was conducted. Eligible participants were English-speaking adults with a breast or gynecologic cancer diagnosis who had received genetic counseling and testing with a MGPT from one Comprehensive Cancer Center.
View Article and Find Full Text PDFBackground: Informational and supportive care resources are needed for Hodgkin lymphoma (HL) survivors.
Objectives: The aim of this article is to adapt and evaluate a previously developed survivorship care website for HL survivors.
Methods: A mixed-methods, user-centered design, including one-time focus groups, was followed by iterative web design and user testing.
Purpose: To develop and evaluate a measure of cancer genetics knowledge relevant to multigene panel testing.
Methods: The instrument was developed using systematic input from a national panel of genetics experts, acceptability evaluation by patient advocates, and cognitive testing. Twenty-four candidate items were completed by 591 breast or gynecological patients who had undergone genetic counseling and multigene panel testing in the past 18 months.