Living with adult-onset myotonic dystrophy type 1: a scoping review.

Purpose: To identify the existing literature on experiences of living with adult-onset myotonic dystrophy type 1 (DM1) from people with adult-onset DM1, their caregivers and health care professionals.

Materials And Methods: Following the framework of Arksey and O'Malley, a literature search was performed in five databases in October-November 2022. An updated search was conducted in December 2023.

Women's experiences with opting out of cervical cancer screening and the role of the nurse in the women's decision-making process.

Aim: To explore Danish women's experiences with opting out of cervical cancer screening and the role of the nurse in the women's decision-making process.

Design: A qualitative study using semi-structured, individual interviews with a phenomenological-hermeneutic approach.

Methods: Interviews were conducted with 13 women with experience in opting out of cervical cancer screening.

A retrospective study of needs and interventions among patients with myotonic dystrophy type 1 in Denmark referred to rehabilitation in the period 2000-2019.

Unlabelled: RATIONALE, AIMS AND OBJECTIVES: Myotonic dystrophy type 1 (DM1) is a progressive multisystem disorder that requires a special focus on the delivery of health and rehabilitation. The aim of the study was to identify the needs and interventions in patients with DM1 referred to a national rehabilitation hospital and to illustrate the needs and interventions in relation to predefined subgroups of disease classification.

Method: Electronic medical records from the period 2000-2019 of a randomized sample of patients with DM1 (N = 193) were reviewed to identify rehabilitation needs and interventions.